Monday, 30 April 2012

Day 30: Challenge Met!


So guys'n'gals, it's Day 30 and the final post of HAWMC.  I know I didn't post every day, but I still worked hard to make sure I produced all of the posts by April 30th, so I'm going to say that I pretty much met the challenge. 

The last prompt was to produce a word cloud on Wordle, buttt I couldn't get Java to work on my laptop so I drew one.  It's quite literally a diabetes word cloud...


Sunday, 29 April 2012

Day 29: Diet Coke For The Diabetic


Yippee!  I've finally caught up with my HAWMC posts and I'm on track for the final stretch.  Today's prompt is to write a 6 sentence story.  I've never been particularly good at keeping things short and concise - I tend to ramble or go off on a tangent.  Think I may find this challenging...

I took a sip through a straw.  The liquid came into contact with my tastebuds.  Sweet, sickly, full of sugar - I spluttered.  It wasn't the first time it had happened.  I took the drink back up to the counter, manoeuvring my way through the queues of hungry customers.  I addressed the woman who had served me - "I am a Type 1 Diabetic and I asked for Diet Coke!"

Saturday, 28 April 2012

Day 28: Happy 1st Birthday, Diabetic Dais!


Although it's now the early hours of the morning on Sunday 29th April, Day 28 was my blogging birthday!  Diabetic Dais is 1 year old!  In regard to marking the milestone, the prompt for this post couldn't be more perfect.

The first time I...wrote a post on Diabetic Dais, I didn't know where to begin.  It was the afternoon and I'd been trying to figure out layouts and pages and colour schemes for most of the day.  I finally sat down on my bed to write and my mind went blank.  Title?  I was unimaginative to say the least: 'The First Post' was my best idea.  Then I played around with the appearance and size of my font for a while.  I uploaded some irrelevant images to see how it all worked, only to delete them immediately.  Anything to distract myself from actually writing.  

What could I write about?  I could have moaned continuously about my rollercoaster blood sugars, or whined about what an evil, incurable disease diabetes is.  No.  If I'd have done that, I probably wouldn't have ever written another post again.  I'd have depressed myself so much that I would have never returned (and neither would anyone else!)  In years to come I would think about that blog I almost got into writing and Google 'Diabetic Dais', only to find that it's on page 9086743687367953868387568.

I spent a considerable amount of time either gazing out of my window or wandering aimlessly around the Diabetes UK website searching for inspiration.  Eventually I realised that if I didn't want to depress myself or others by writing myself into complete oblivion, the only alternative was to make myself feel better.  The positive things about having diabetes!  They do exist, right?  They must do.

I started typing.  I must admit, I was kind of nervous.  Being a blogging novice meant that I didn't really know what tone was appropriate.  At this point, I didn't even have any readers so I was clueless as to who I was even addressing!  Nevertheless, I enjoyed it.  Before long I was barely even thinking about what I was writing.

That was it.  Finished.  I read it, checking for spelling and grammar mistakes.  I previewed it.  I read it again.  Okay.  I hovered my mouse over the 'Publish' button for a few seconds.  Click. 'Your post has been published'.  I went away hoping that someone, somewhere would read it.

People did read it.  In fact more people than I could have ever imagined have read The First Post and others.  In the last year I have written 60 posts, have started my Diabetes UK blog, have met some inspiring and beautiful people and have become a part of an online community that I absolutely adore.  I want to thank you all for reading, for commenting, for following, for subscribing, for tweeting, for sharing and for supporting me.  You're awesome!

Day 27: Trials and Triumphs of T1


5 challenges:

1)  Doing my injections - I think this is one of the main challenges for most diabetics.  For me it's not because they hurt or I'm scared of needles, but because sometimes I just don't want to. Sometimes I feel I'm too busy, or I'm not in the right environment, or I just want to be non-diabetic for a day or two.

2)  Going to endo appointments -  I don't struggle as much with attending these anymore, but they used to feel like the bane of my life.  It didn't even matter that I only had to go every 3months in the paediatric clinic, just the thought of the whole ordeal would fill me with dread. Because I wasn't taking care of my diabetes properly, I hated finding out what my HbA1c was, having my insulin doses adjusted and being asked if I'd been recording my blood sugars, when I only ever felt that I was disappointing my diabetes team and myself when I hadn't.  The last thing I wanted to do was talk about my diabetes, when I was simply wishing it would disappear.

3)  Glucotabs and Lucozade - Because I've had diabetes since being really young, I've never acquired a sweet tooth.  I find anything that's really sugary to be absolutely repulsive.  However, two of the best quick-acting hypo treatments are Glucotabs and Lucozade.  Chocolate bars and cookies are appealing, but they won't raise your bg's quickly because of the fat in them and the way they are digested.  Glucotabs are the easiest to carry around with you and Lucozade is usually the easiest to get hold of in an emergency.   Convenient?  Yes.  Tasty?  No.  Sometimes I have to force myself to drink Lucozade or shove Glucotabs down my neck, even if I'm really low.

4)  Going for my retinopathy screening - Everytime I go, I work myself into such a frenzy.  Not only do I absolutely despise eye-drops, but I worry so much about what the results are going to be.  As soon as the screening is complete and they have the photos, I always hastily ask if they look ok, my voice quivering.  Sometimes I wonder if I should even go, but then I have to remind myself that ignorance isn't bliss.

5)  Doing the right thing -  I've often wrote about how diabetes doesn't give you a choice.  You have to do injections, test your blood etc.  However, I've realised that the thing that actually makes diabetes hard sometimes is that we do have a choice.  If I don't want to test my blood sugar, or give my insulin or treat my hypos I don't have to.  Although I know there will be horrendous long-term complications, sometimes it just feels easier not to at the time. So, for me, making the choice to do the right thing for my diabetes can be the biggest challenge of all.

5 victories:

1)  Doing the DAFNE program - Those on my diabetes team know that trying to just get me on it was like trying to make a sheep 'moo' for a long time.  I didn't want to know because 1. I was dubious that anything could be so amazing that it would massively improve my management and 2. I generally wasn't interested in anything that involved diabetes.  However after months of persuasion and going on and on about it, I did DAFNE.  They weren't lying, it was amazing.  I met some wonderful people and learned so much.  My HbA1c has improved significantly since doing DAFNE and I would recommend it to every diabetic.

2)  Talking to others about my diabetes - I used to be useless.  I'd get embarrassed and shy away from any situation which meant I'd have to reveal that I have diabetes.  That often meant that I'd end up in some sticky situations.  I'm not like that anymore.  I've come to realise that my diabetes is part of me and it's nothing to be ashamed of.

3)  Testing my blood - Estimating how much insulin I needed to give myself by seeing how high/low I felt at the time was never a good technique.  I did this most days for a couple of years and I regard myself as being lucky for not being riddled with diabetes complications as a punishment for my stupidity.  

4)  Carb counting - Hit and miss, hit and miss.  I was like that for years. I never really took notice as to why carb counting was so important and so, in my ignorance, rarely bothered to do it.  Nowadays, there isn't one packet of crisps or chocolate bar with unread nutritional information.  There isn't one rice dish or bowl of pasta that goes unweighed.  There isn't one place that I don't take my Carbs&Cals book.  My boyfriend and I even cook our potatoes/spaghetti/whatever in separate pans, just so we know I'm going to bolus correctly.  Some may say it's excessive, but I know I'm doing the right thing.

5)  Blogging - I see 'Diabetic Dais' and my Diabetes UK blog as victories because of how much writing them improves my diabetes control.  The more I write about diabetes, the more I focus on it and the better my blood sugars are!  Not only that, but I've met some beautiful diabetics through writing my blogs, who I wouldn't necessarily have had the pleasure of talking to if I didn't rant and ramble on like I do!

Day 26: Dais says...


DAISY SAYS:  "Diabetes loves me, it loves me not..."

Day 25: The Strangest Hypo Ever


Daisy awoke normally.  She stirred and opened her eyes a little expecting the morning light to be flooding into her bedroom, only to find that it wasn't.  It was still dark outside, but she could make out the shapes of the familiar objects that surrounded her.  Books, cushions, a teddy bear.  The dim glow of the landing light made things just about visible.


She must have had at least a couple of hours before needing to get up for school, so she rolled over on to her side to drift back off to sleep...or at least she would have done had she have been able to.  The left hand side of Daisy's body wouldn't move.  Not even a little bit.  Not at all.


Panic started to set in almost immediately.  Her arm and hand were limp, fingers splayed out and her leg, motionless.  Help.  If she were to shout loud enough, she would surely be able to wake her mother in the room next door.  Opening her mouth she got ready to scream.  She produced no sound, not even a murmur.  Not even a whisper.  Silence. 


What should she do?  Dreadful thoughts polluted her mind.  Was she paralysed?  Would she ever be able to walk again?  She was only 11years old!  She'd worked herself into such a state that the possibility of her thinking straight, and coming to a logical decision, was unlikely.  Calm down, Daisy.


It was noticeable to her that the pace of her thumping heart had slowed.  It no longer felt like it was eager to make a rapid escape from the contours of her chest.  Daisy began to dedicate her focus to each, individual limb; pleading with her muscles, begging them for movement.  They remained still.  Not even a twitch.  Not even a twinge.  Lifeless.


She had to do something.  She had to get out of bed somehow.  Daisy rolled on to her stomach.  Using every bit of energy in the right hand side of her body, she twisted around until both legs were dangling over the side of her bunkbed.  Yes, her bunkbed.  Not only was she unable to move, but she was also 6ft off the ground.  For some reason, thoughts of Julio Iglesias being determined to beat his diagnosis of life-long paralysis popped into her head.  If that was what God had planned for her too, she was going to change his mind.


Daisy put her right foot on the ladder of the bunkbed and clung on to the higher metal bars with her working hand.  Fearful, she attempted to 'bunny-hop' towards the ground.  Only using one hand and one leg, this wasn't the best idea.  Her foot slipped out from underneath her.  She lost the grip she had and began to grasp at thin air.  She fell.


Her body and the hard, wooden floor collided with a tremendous bang.  For the first time since she had awoken, Daisy's vocal chords released sound.  Sound in the form of a wail, a scream, a cry for help.


The door to the bedroom swung open and her mum entered, panicked and flustered.  She picked Daisy up off of the floor, held her and asked her what had happened.  Daisy still couldn't speak.  She was struggling to even breathe.  She gasped and tried to inhale, but her lungs felt as though they had no capacity, even for oxygen.  


When her mother realised she wasn't going to get a response, she took action by addressing her first concern.  She tested Daisy's blood - 2.4, just as she'd expected.  Lucozade, digestive biscuits, some TLC.  Before she knew it, Daisy was back to normal.  She told her mum of her frightening and strange experience.  She clenched the fist of her left hand and then opened it.  She wiggled her toes on her left foot.  Relief.


Daisy got back into bed.  Her mum tucked her up and kissed her forehead before returning to her own room.  Daisy closed her eyes, just as the sun began to rise outside.  She thought of how that was the worst hypo she had ever had.  She hoped she would never experience a hypo like that again.  Daisy fell asleep.  Her Diabetes Devil rubbed it's hands together in delight, rejoicing in it's mischief and the trouble it had caused.

Wednesday, 25 April 2012

Day 24: T1 Terminator!



Decided to get a bit creative and designed my own diabetes superhero/mascot
T1 TERMINATOR!
© T1 Terminator - Diabetic Dais